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SESAMI – Information Sheet

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Social inclusion through Employment Support for Adults with Mental Illness

SESAMI Information Sheet

We are inviting you to take part in a research study. Before you decide, it is important for you to understand why the research is being done and what it will involve. Therefore, please read this information and discuss it with others if you wish. Ask us if there is anything that is not clear or if you would like more information. Take time to decide whether or not you wish to take part.

What is the purpose of the study?

We know from previous research that providing employment support can help people who use mental health services to find and keep a job. In England, employment support is provided in different ways by different organisations. The purpose of this study is to find out what works best for service users. Your involvement will be very valuable in helping us inform the development of employment services for other people with mental health problems.

Do I have to take part?

No. It is up to you to decide whether or not to take part. If you do decide to take part, please keep this information sheet, and complete and return the questionnaire and consent form. If you do this, you are still free to withdraw at any time and without giving a reason. A decision not to take part, or a decision to withdraw, will not affect the service you receive from [agency].

What will happen if I do take part?

If you decide to take part, a researcher will contact you to arrange a convenient time to complete the telephone interview. We will send you a copy of the questions beforehand, so you know what to expect. The interview lasts about 45 minutes. It asks about how satisfied you are with your life, about your employment experiences, about your mental health and about your use of mental health services. We will then contact you again after about 9 months to arrange a second telephone interview. This will be very similar to the first interview, so we can look at any changes identified by the people taking part in the study.

What are the possible disadvantages and risks of taking part?

There are no risks involved in taking part but it is possible that you may find some of the questions upsetting. If you do not want to answer any of the questions you do not have to – just tell the interviewer you prefer not to answer that question. If you do become upset, the interviewer will stop the interview and ask you if you would like to carry on the interview at another time or withdraw from the study.

What are the possible benefits of taking part?

There are no direct benefits for the individuals who take part in the study but we hope the results will help us to develop employment services that are most effective in enabling people with mental health problems to find and keep a job.

Will my taking part in the study be kept confidential?

All information that is collected about you for the study will be kept strictly confidential. We will not include your name or any other information that might identify you in the written record of the interview. The only circumstances in which we would let anyone know you are taking part are if you become very upset during or after the interview, or if we feel you may be at risk of harming yourself or someone else.

What will happen to the results of the research?

We will write a report comparing how well the employment services taking part in the study have worked for the people we have interviewed. Lessons from the research will be used to inform the development of employment support in England. We will not use your name or any other information that might identify you in the report. The report will be available by June 2006. The interviewer will ask if you would like a copy and will arrange for one to be sent to you if you wish.

Who is organising and funding the study?

The study is being organised by the University of Durham, Anglia University, City University in London and The Sainsbury Centre for Mental Health, in partnership with the employment projects taking part. The research is being paid for by the European Social Fund.

Who has reviewed the study?

The study has been reviewed by the European Social Fund’s Higher Education Service at Liverpool John Moore’s University. The North West Multi-centre Research Ethic Committee has approved the research.

Contact for further information:
Jan Slade (Researcher)
Centre for Applied Social Science
University of Durham
Elvet Riverside 2
New Elvet
Durham
DH1 3JT

Telephone 0191 334 1473

Thank you for taking the time to read this information.